Each year we have Autism awareness world week, and it’s here and it starts today, perfect timing as we head into April for autism awareness month. As the name suggests, we aim to raise more awareness and acceptance of autism.
Autism is the fastest growing disability in modern Britain. 1 in every 68 children are diagnosed with autism. Autism is a life long disability and it has no cure. It’s an invisible disability, you can’t tell just by looking at someone that they have autism. The spectrum is huge and no two autistic people are the same. They may have similar tracts and comforting movements but they all lack skills in their development and understanding the world as we know it.
I’m a huge autism advocate and I’m extremely proud of my daughter. She is my world along with her two siblings. Autism is a journey that nobody can ever truly prepare you for. There are many positives, many negatives and some life changing milestones on this journey. It’s always going to be filled with bitter & sweet moments. I share all the inspiring moments in our life as well as the bad days. It never gets easy! You get good days, bad days, amazing days and complete horrid days.
I want to raise as much as awareness & acceptance as I can for everyone on this journey. I’m almost 20 years in on this journey. I’ve been told “I’m brave”, “I’m inspiring”, “I’m amazing”. The truth is, I’m not any of those things. I’m simply a mother. A mother who is trying to do the best she can. A mother who’s heart breaks on a daily basis. A mother who knows her daughter will never grown up. A mother who’s scared for the future of her daughter. A mother who still cries to sleep some days. A mother who at times feels completely useless. A mother who watches her grown adult daughter still behaving like a 2 year old. A mother for who time stands still for her daughter. A mother who has never experienced a real conversation with her daughter. A mother who will never get to see her daughter say I do or have her own children. A mother who knows her daughter will never have a independent life. A mother who so wishes their was a cure!
So you see it’s not really inspiring at all! In all honestly it’s cruel, it hurts, it’s tough but she’s my daughter, she’s inspiring!! I will never give up on her. Autism effects everyone living with it. Her siblings have had to grow up before their time, they’ve had to make many scarifies, they’ve missed out on a “normal” childhood. They know more about autism than they probably do anything else. Autism chips away at you each day, as parent it slowly kills you, that’s the harsh reality of living with autism!!
No matter how tough it really is I wouldn’t be without her. I wouldn’t know what to do with myself, this has become our life and it’s our “normal”. No one truly understands what it’s really like unless you too are living with it. I know it’s because of my daughter I am who I am. Its because of her I have more compassion, more understanding, more humanity. She has made me this way. Without her, I too probably would be wrapped in my own world, where my little problems would seem huge and I wouldn’t understand what real difficulties are, that’s the truth! So you see I owe her so much because of her we as a family unit are better people. As a family we take nothing for granted. As a family we have a amazing bond and unconditional love. As a family we share others joys & sorrows like they are own. We are not bitter at how it is for us.
We don’t know what the future holds, but what we do know is that we will continue to be her life line. We will continue to support her no matter how hard or tough it’s gets. We will get through the bad days together, we will laugh together through the good days. We will never give up on her or lose faith. We will love her unconditionally and we will be her eyes, her ears, her voice, her rock and anything else we need to be. Whether she’s 20 or 40 she will always be the baby of our family. She will always come first, her needs are placed above the rest of us. So maybe now you can understand why raising awareness and acceptance is vital & so important to those living with it. I want my daughter to experience as much of the world as she can with out stares or rude remarks. I want her to experience all the things we take for granted, above all else I want her to be acceptanced for the beautiful young lady she is. She didn’t ask for autism but as her family we ask for awareness & acceptance.
Aaisha, we love you so much and we promise never to let go of your hand. We will do whatever we need to ensure your safe & happy always. #AaishasHope